ALS is not incurable: it is underfunded.

ALS can strike anyone, of any age, at any time. Right now, ALS is always fatal. It doesn't have to be this way.

About Us

ALS Action Canada is Canada’s only ALS patient-led charitable organization (BN# 791367204 RR 0001) building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research and support for patients, caregivers, and families. With members from across the country.

A man in a winter sweater is smiling and interacting warmly with a person in a wheelchair on a sunny day outside a building.

A middle-aged woman with gray hair, smiling while looking off to the side, standing outdoors with a blurred natural background.

Two people wearing purple shirts that read 'Walk to...' smiling and sharing a moment together. A woman with dark hair is laughing while a man wearing a baseball cap looks content.

Canada's ALS Stories

Discover the heartfelt stories of Canadian families living with ALS, showing their incredible strength and courage. By sharing these personal journeys, we hope to inspire progress in research and support, helping us all move closer to finding a cure.

Read their stories