News

Our news, and news from Canada and around the world  about new therapies, clinical trials, research and patient-led advocacy.

MLB recognizes Lou Gehrig Day for ALS Awareness Month

CTV News
02.06.21

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SIMMONS: Former NHLer Mark Kirton shares brave journey battling ALS

Toronto Star
01.06.21

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Former Smithers resident loses fight to ALS

BC Local News
27.05.21

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ALS Action Canada urges the Government of Alberta and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

26.05.21

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People affected by ALS applaud provincial funding to support local clinical trials, research centre

CBC News
21.05.21

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ALS Action Canada urges the Government of Manitoba and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

20.05.21

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ALS Action Canada urges the Government of Nova Scotia and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

20.05.21

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ALS Action Canada urges the Government of Ontario and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

20.05.21

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ALS Action Canada urges the Government of British Columbia and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

20.05.21

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‘We love you, Ron!’ Former Surrey fire chief supported in battle with ALS

Global News
13.05.21

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‘Families with ALS need your help’: Tommy Chong lends support to advocacy group looking to end disease

North Shore News
06.05.21

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ALS Action Canada urges the Government of Canada and Health Canada to swiftly approve new ALS drug therapeutic AMX0035

05.05.21

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From Lawyer to Fighter: How I Became an Advocate for ALS

Advocate
01.05.21

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North Vancouver man challenges B.C. residents to donate portion of their ICBC rebate to ALS research

CTV News Vancouver
26.04.21

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‘ALS has taken so many things away’: Kelowna patients speak to need for clinical trials in B.C.

Global News
21.04.21

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North Vancouver ALS patient says hope needed in form of clinical trials in B.C.

North Shore News
21.04.21

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Manitoba Health ordered to reimburse man with ALS for virtual appointment with out-of-country specialist

CBC
17.04.21

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ALS Patients Fight for the Right to Try and Patient-Centric Trial Design

BioSpace
30.03.21

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‘I have been given a gift and extra time’: Flames assistant GM Chris Snow battles with ALS

The Globe and Mail
23.03.21

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B.C. men use their experience to help future ALS patients

Global News
22.03.21

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‘Hard to mentally grasp this situation’: Oakville man, 49, and drummer for Burlington band, diagnosed with ALS and family needs help

Toronto Star
18.03.21

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Amylyx Pharmaceuticals to Present New Long-Term Data From the Pivotal Centaur Trial in ALS

AMYLYX
18.03.21

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Further government support needed for ALS funding in B.C.

BC Liberal Caucus
12.03.21

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MPs and ALS patients challenge government agencies to review new ALS drugs in six months or less

Hill Times Research
11.03.21

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ALS patients, families urge faster approval for treatments

News 1130
11.03.21

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Dr. Sanjay Kalra on finding a neuroimaging biomarker for ALS: Challenge Accepted

Gateway
10.03.21

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Cariboo-Prince George MP Todd Doherty looks to speed up approval for new ALS treatments

The Williams Lake Tribune
10.03.21

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ALS Action Canada issues media release urging Health Canada and the provinces to swiftly approve AMX0035

10.03.21

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Maple Ridge family needs help after ALS diagnosis

Maple Ridge-Pitt Meadow News
09.03.21

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Amylyx Pharmaceuticals Plans Regulatory Filing of Amx0035 for the Treatment of Als in Canada

AMYLYX
09.03.21

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Major League Baseball to have annual Lou Gehrig Day on June 2

ESPN
04.03.21

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A new ALS drug is extending patients’ lives by months. It’s giving hope for those facing such a ‘brutal illness.’

USA Today
03.03.21

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Don Reilly, drummer for Burlington’s Crowe, fighting ALS

A Journal of Musical Things
01.03.21

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ALS Action Canada group ropes in political leaders

Burns Lake Lakes District News
24.02.21

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Former Burns Lake resident advocates for better ALS treatment in B.C.

My Bulkley Lakes Now
18.02.21

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‘I want to come home, but there are no treatment options in B.C.,’ says man diagnosed with ALS

Burns Lake Lakes District News
10.02.21

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Who Was That Masked Man? These Superheroes Fight ALS

Health Insight
07.02.21

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“What Can I Do?”

Sara's Life with ALS
07.02.21

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Egan: While she died of ALS, Carol Skinner’s spirit would not be conquered

Ottawa Citizen
07.02.21

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BC MLAs Susie Chant (NDP) and Karin Kilpatrick (Lib) work together to support ALS Action Canada

03.02.21

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COVID-19 vaccines show what’s possible. Now, former Obama staffer says it’s time to take that drive toward terminal illnesses like ALS.

30.01.21

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Hope through ALS clinical trials needed in the province, says B.C. man

Burns Lake Lakes District News
27.01.21

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NDP MP Heather McPherson joins federal ALS Caucus

22.01.21

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Opinion: Use COVID pause to reconsider drug-price regulation

Financial Post
18.01.21

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Breakthrough discovery reveals way of reversing Motor Neurone Disease damage

Herald
17.01.21

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Calls for ALS clinical trials in B.C.

CityNews 1130
08.01.21

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BC Man calling for Canada to approve ALS therapy treatments

CTV News
05.01.21

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ALS patients and advocates say Canada needs better access to new treatments

CBC News
03.01.21

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Canadians with ALS fear lengthy wait for new, potentially life saving drugs

CTV News Montreal
24.12.20

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Dr. Angela Genge, Director of the ALS Global Centre for Excellence at the Montreal Neurological Hospital, calls for more urgency in approving new ALS treatments

23.12.20

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Fundraising underway for former Smithers resident diagnosed with ALS

Burns Lake Lakes District News
18.12.20

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ALS Action Canada meets with federal Liberal Party’s Pacific Caucus

18.12.20

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SNOWY STRONG Funds Distributed $200,000 Donated to Sunnybrook Health Sciences Centre

News Release
18.12.20

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Canadians with ALS Need Urgent Access to Promising Treatments Available Worldwide

Media Release
17.12.20

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Investigational drug SLS-005 (Trehalose) enters HEALEY ALS Platform Trial

Press Release
16.12.20

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Pandemic has made years of inadequate care worse, says extended care resident’s sister

CBC News
12.12.20

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Roadmap to a cure for ALS

110º Magazine
01.12.20

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Flames assistant GM Snow in ‘great spirits’ after surgery

TSN
30.11.20

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ALS Action Canada presents it ALS plan to MPs Tamara Jansen, Kenny Chiu, Kerry-Lynne Findlay and Tako Van Popta

30.11.20

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Co-founder of viral ALS Ice Bucket Challenge dies at 37

CTV News
23.11.20

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Donations pour in after local man diagnosed with ALS

BlackburnNews.com
23.11.20

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U of T Researchers Identify an Eye Signature for ALS

Temerty Faculty of Medicine, University of Toronto
23.11.20

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The Expanding Landscape of Therapeutic Targets In ALS Clinical Trials

Nicolas J. Maragakis, Johns Hopkins Medicine
19.11.20

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A Chippewa Secondary School graduate is helping lead national research on ALS

BayToday.ca
18.11.20

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Petition launched calling on Canada’s Health Minister to initiate pilot program to speed up approval process for new ALS therapies

08.11.20

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Jambaree Donates ALS / SLA Action Canada Website

Press Release
04.11.20

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It’s Official! All 30 Major League Baseball Teams Endorse League-Wide Lou Gehrig Day!

Press Release
30.10.20

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US House and Senate introduce Accelerating Access to Critical Therapies for ALS Act (ACT for ALS)

Press Release
29.10.20

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BRAUN: Bureaucrats will stop game-changing meds from coming here

Toronto Sun
28.10.20

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Patients, health organizations band together to bring breakthrough treatments to Canada sooner

Global News
21.10.20

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Toronto Blue Jays support annual, league-wide “Lou Gehrig Day” to help defeat ALS

21.10.20

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Deane Gorsline was diagnosed with ALS at 29 and is now fighting to access new treatments – watch a video about him here

17.10.20

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ALS Action Canada meets with BC NDP candidates from Vancouver’s North Shore

16.10.20

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BC goes to the polls on October 24; ALS Action Canada still waiting for response to letter

15.10.20

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ALS Action Canada meets with CF Get Loud Canada to discuss advancing Canada’s “Rare Disease Strategy”

15.10.20

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ALS Action Canada members takes part in pharmaceutical industry round-table

12.10.20

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ALS Action Canada meets with BC Liberal Party candidates from Vancouver’s North Shore

05.10.20

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A Windsor mom fights back against ALS diagnosis

Our Windsor
24.09.20

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ALS Action Canada calls for national leadership from BC for ALS treatment options, care and research

15.09.20

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ALS Action Canada meets with federal ALS Caucus members

08.09.20

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Pandemic rules keeping terminally ill man from seeing family

CBC News
07.09.20

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2 College Students Dreamed Up an A.L.S. Treatment. The Results Are In.

New York Times
02.09.20

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B.C. announces new coverage for ALS drugs, and funding towards centre of excellence

Maple Ridge Pitt Meadows News
25.08.20

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A new approach to ALS drug trials gives patients hope

Boston Globe
12.08.20

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ALS Action Canada’s submission on the “Proposed Alignment of CADTH Drug Reimbursement Review Process”

10.08.20

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ALS Action Canada calls on Major League Baseball and Toronto Blue Jays to support annual Lou Gehrig Day

08.08.20

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ALS Action Canada’s submission to the Federal Government for the 2021 Budget

06.08.20

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ALS Action Canada’s submission to the federal Patent Medicine Prices Review Board

04.08.20

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Tofersen Safe, Appears to Slow Disease Progression in SOD1 ALS Patients, Phase 1/2 Trial Shows

ALS News Today
22.07.20

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Larry Uteck entering Canadian Football Hall of Fame

CBC
16.07.20

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Life in long-term hospital “unbearable”: Montreal man with ALS

Montreal Gazette
15.07.20

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ALS Action Canada meets with Francis Drouin, Chair of federal ALS Caucus

03.07.20

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Trick-shot challenge shines spotlight on Flames exec Chris Snow in fight with ALS

Calgary Sun
19.06.20

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North Van family living with ALS advocates for more research

North Shore News
18.06.20

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BC Government provides “non response” response to concerns of 15 BC ALS families

12.06.20

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ALS Action Canada meets with MP Kerry-Lynne Findlay, PC, Q,C, (South Surrey – White Rock)

10.06.20

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Staying positive after a shattering ALS diagnosis

Belleville Intelligencer
05.06.20

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Hope for an ALS cure for Squamish ski instructor, and others like him

Squamish Chief
04.06.20

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Star Trek’s Kenneth Mitchell Opens Up About Continuing His Acting Career After ALS Diagnosis

People.com
19.03.20

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This Ontario teen was 12 when she became a caregiver. She’s not alone .

CBC News
29.01.20

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ALS: Quebec’s first philanthropic research chair – $1 million to advance research in Amyotrophic Lateral Sclerosis at the INRS

Institut National de la recherche scientifique (INRS)
27.01.20

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Former Peterborough Pete Mark Kirton now facing off against ALS

Peterborough Examiner
27.10.19

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How one man is speaking up for ALS patients, even without his voice

CBC Radio
25.10.19

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“Dance Me To The End: Ten Months and Ten Days with ALS” by BC author, Alison Acheson

23.10.19

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Paralyzed author writes about loss and grief in book written with his eyes

CTV News
22.09.19

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PJ Stock Competes in The Battle of the Blades in support of ALS

Press Release
19.09.19

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Sean M. Healey & AMG Center for ALS at Mass General launches first ALS Platform Trial with 5 promising drugs

Press Release
18.09.19

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We need a public outcry’: B.C. father with ALS ends life after struggle to stay at home

CTV News
09.08.19

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Former NHL’er, Aaron Volpatti finishes Ironman for ALS

Revelstoke Review
08.08.19

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Former Kelowna hockey player dies after battle with ALS

Kelowna Capital News
21.05.19

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Ottawa approves drug shown to slow down deadly neurological disease ALS

CBC News
04.10.18

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Montreal neurologist says doctors must be better about early detection of ALS

Montreal Gazette
12.06.18

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ALS has devastating effect on families

The Chronicle Herald
07.06.18

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ALS: Canadian patients eligible for inclusion in U.S. clinical trials

Montreal Gazette
29.03.18

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Life takes an unpredictable turn for well-known South Okanagan baker

Penticton Western News
21.03.18

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The Joe Thornton And Steve Barber Story | Hometown Hockey

SPORTSNET | Hometown Hockey
19.11.17

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The New Pornographers’ Kathryn Calder Recalls Her Mother’s Terminal Illness in a Documentary

Medium
21.04.17

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BrainStorm Seeking Approval To Distribute NurOwn® in Canada

Media Release
21.02.17

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BrainStorm seeks early approval for ALS stem cell treatment in Canada

CTV Moring News
21.02.17

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Dean Stock, former Halifax Mooseheads’ captain, dies after battle with ALS

25.09.16

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Mauril Bélanger, longtime Ottawa-Vanier MP, dies of ALS at 61

CBC News
16.08.16

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“Hold On, Let Go: Facing ALS with courage and hope”, by Nadine Sands

04.05.15

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Understanding ALS

Maclean's
11.03.14

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