About UsAbout ALSCanada’s ALS StoriesMemorialNewsInterviewsTake ActionContactDonate Now
Donate NowMedical professionnalsPatient & Families

About Us

Founded in 2020, ALS Action Canada is Canada’s only ALS patient-led charitable organization (BN# 791367204 RR 0001) building a movement to ensure urgent, equitable access to promising therapies for Canadians living with ALS; more and better clinical trials for ALS therapies throughout Canada; and increased federal and provincial investment in ALS research and support for patients, caregivers, and families.
With members from across the country, we are a strong coalition of people living with ALS, their families, and their supporters.
ALS Action Canada is part of a growing, global, patient-led movement dedicated to ending this devastating disease forever.

Our Vision

A world without ALS.

Our Mission

To support families living with ALS by mobilizing a patient-led, public movement to ensure swift and equitable access to promising therapies and clinical trials throughout Canada, and to ensure the federal and provincial governments increase investment in ALS research.

Our Goal

To #EndALS forever through advanced research, treatments, and trials that can detect ALS early and stop, reverse, or cure ALS.

 

Inspiring Conversations: Virtual Interview with pALS and cALS for ALS Awareness Month

Join us for a special session during ALS Awareness Month, where we dive into the lived experiences of individuals with ALS (Lou Gehrig’s disease) and their caregivers. Hosted by Jida, Executive Director of ALS Action Canada, this interview explores the challenges, triumphs, and insights of our incredible guests.

Cali and Matt, cALS and pALS, at the ALS Advocacy Day.

Our Team

Jida El Hajjar, PhD

Executive Director - Directrice Générale

Don Wright, MEcon, PhD

Chair

Kevin Moorhead, MSc

Vice Chair

Roger Charles

Board Treasurer

Crystal Krandel

Board Secretary

Mark Kirton

Board Member

Darryl Borsato

Board Member

Kevin Daly

Board Member

Ed Skapin

Board Member

Adrian Molinski

Board Member

Erin Morantz

Board Member

Paul Thandi

Board Member

Jan Mattingly

Board Member

Rick Zwiep

Board Member

Join our fight to #EndALS!

Sign up as to receive periodic email updates and join our circle of supporters!

Subscribe to our newsletter
Privacy PolicyAbout ALSResearchStoriesNewsTake Action

Hope is on the Horizon

Although an ALS diagnosis has been treated as a death sentence, new treatments that can stop and even reverse progression are in development. 

Join the fight on social