United on Parliament Hill: Advocates and NHL Legends Rally for ALS Awareness

Ottawa, September 25, 2024 – In a powerful demonstration of unity and determination, Parliament Hill played host to an extraordinary evening where the worlds of hockey and advocacy converged to fight against ALS. The ALS Advocacy Reception, organized in collaboration with ALS Action Canada, marked a significant milestone in the battle against this devastating disease.

Surrounded by former teammates, dignitaries, and supporters, former NHL player and ALS advocate Mark Kirton was at the center of the evening. Diagnosed with ALS in 2018, Kirton’s tireless efforts have mobilized Canada’s hockey community and inspired action nationwide.

The event celebrated a monumental achievement: the ALS Super Fund, established just nine months ago with the support of Canada’s seven NHL teams, has raised $1 million for ALS research and awareness. Former Maple Leafs captain and Hockey Hall of Famer Darryl Sittler made the announcement, saying, “Thanks to the unwavering support of Canada’s seven National Hockey League teams, some passionate individuals, and countless communities, the ALS Super Fund has reached an incredible milestone of $1 million.”

Sittler also paid tribute to Kirton’s relentless advocacy. “Mark could have felt sorry for himself when he was first diagnosed with ALS. That would have been understandable. Instead, he’s trying to help raise funds to find a cure for people who have the same thing,” Sittler said. Drawing comparisons to Canadian hero Terry Fox, Sittler added, “He’s my hero, as Terry was.”

Wayne Gretzky, who joined the event as a surprise speaker, expressed his admiration for Kirton. “You are a hero to me,”said Gretzky, recalling their years as teammates and the lasting impact Kirton has had on his life. Gretzky’s presence underscored the deep bonds within the hockey community and the collective commitment to supporting ALS advocacy.

The evening was not only a celebration but also a call to action. Mark Kirton delivered an emotional speech, reflecting on the harsh realities of ALS. “We’ve been living this nightmare for six years, and I can tell you, it’s horrific, it’s cruel, it’s torturous. The challenges are not daily challenges; they’re hourly challenges,” he said. Yet, his determination remains unshaken. “This is great,” he said of the $1 million milestone, “But we can’t stop now.”

Key supporters, Biogen and Mitsubishi Tanabe Pharma, were recognized for their invaluable contributions to advancing ALS research and care. Their partnership exemplifies the collaborative effort needed to combat this devastating disease.

Other notable attendees included NHL Alumni Association President Glenn Healy, Toronto Maple Leafs President Brendan Shanahan, Edmonton Oilers CEO Jeff Jackson, Ottawa Senators owner Michael Andlauer, Canada’s Minister of Health Mark Holland, and many others from both the hockey and political communities.

The evening also set the stage for upcoming fundraising initiatives. From December 5-19, the Toronto Maple Leafs will host a virtual auction at Real Sports restaurant, aiming to involve all 32 NHL teams in donating items to raise further funds. Additionally, a charity online fundraiser will feature a mini-concert by iconic Canadian singer-songwriter Jim Cuddy.

The ALS Advocacy Reception underscored the power of collaboration between advocates, policymakers, and the hockey family. Together, we are making strides in the fight against ALS, bringing hope to individuals and families affected by this cruel disease.

For those wishing to support the cause, donations to the ALS Super Fund or participation in the upcoming auction are invaluable in advancing research and care.

Together, we can rewrite the future for those living with ALS.